Privacy Policy

Preserving your privacy is important to Understanding Dementia and we are committed to letting you know how we use your personal information and to making only responsible use of your data. 

The following statement describes how Understanding Dementia collects and uses information about people who visit our website or interact with us in other ways. We aim to be clear when we collect your information about what we will do with it. 

1) Who we are

1.1 Understanding Dementia exists to provide information about and awareness of the condition and training in its effective management.

1.2 References to “we”, “us”, or “our” in this privacy policy are references to Understanding Dementia, registered charity number 238331.

1.3 If you have any queries about this statement please contact Mrs Christine Ferris at The Corner House, Station Road, Twyford, Reading, Berkshire, RG10 9NG or email 

2) What data we collect and how we use it.

2.1 We will collect personal information from you when you or your organisation enquire about our activities, register as a member with us, offer to volunteer, or subscribe to one of our services. 

2.2 If you support us, for example by attending an event, enrolling on a training course, donating, signing up to Gift Aid, or signing up to a campaign, we will usually collect your name, contact details, and whether and how you would like to be contacted. If you volunteer with us or enquire about volunteering or employment opportunities we may request such further information as is necessary to ensure that you can effectively perform the task that you have volunteered to undertake to further our aims and objectives. If appropriate we may also ask to collect your date of birth, details of your academic or professional qualifications, financial details, Gift Aid eligibility, reasons for support and/or attending training course, and responses to our campaigns.

2.3 We collect these data for administration purposes and so we can keep you up to date with information you have requested or may be interested in; ensure that training provided meets your needs; ask for more support to run our fundraising or other events and campaigns; fulfil our legal responsibilities for financial and Gift Aid supporting.

2.4 We will keep your data only for as long as necessary. If you have kindly donated to us we are required to keep this information for seven years. If you have not donated to us, we will only keep your data for three years. We will keep data collected from volunteers for two years after you stop volunteering with us.

2.5 Some of our supporters kindly tell us stories about their experiences or allow us to use photographs to help us in our campaigns. Your data will remain anonymous unless you consent to it being attributed. We will record the details of the story and contact details to enable us to get updated approval to use the story. We will keep this information for three years after you give it to us and will always contact you each time we wish to use it.

2.6 Part of the work that we do may involve carrying out research. If you agree to take part, we will record responses to questions that you answer and your personal details. The data will be used to fulfil our research objectives and may be shared with other relevant projects or incorporated into our training courses. Your data will remain anonymous unless you consent to it being attributed. The data we collect will be kept for five years. 

3) Complaints 

3.1 Should you wish to register a complaint we will collect your name, contact details and details about the complaint to enable us to respond, monitor and improve our organisation.

3.2 The data will be shared with anyone who is involved in resolving the complaint, for example, agencies that we have partnered with. 

3.3 We will hold these data for six years. 

4) Legal Compliance

4.1 Understanding Dementia may disclose your information if required to so by law or in response to a court order. 

5) Consent

5.1 By providing us with your personal information you consent to the collection and use of that information for the purpose described in this Privacy Policy.

6) Links

6.1 Our website may contain links to websites run by other organisations. Understanding Dementia is not responsible for the privacy practices of other organisations’ websites so you should read their privacy policies carefully.


7) Data Protection (Rights of Access)

7.1 You have the right to ask for a copy of the information we hold about you (for which we may charge a small fee) and to have any inaccuracies in your information corrected.

7.2 If you wish to exercise these rights please contact us at The Corner House, Station Road, Twyford, Reading, Berkshire, RG10 9NG or email 

Understanding Dementia will keep this privacy policy up to date by amending it as and when necessary. The most up to date version will always be available on our website so please check from time to time. By continuing to use our website you will be deemed to have accepted any changes.